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Transitioning Patients from Pediatric to Adult Care
One way to improve health outcomes for youth with special health care needs is ensuring that they successfully transition from pediatric to adult health care. Health care providers help with this transition by ensuring youth:
- Understand their changing health needs
- Take more responsibility for managing their own care
- Identify appropriate adult health care providers
- Maintain insurance coverage
National Health Care Transition Center for families supporting youth and young adults to access health systems as new health care consumers.
- College Transition Checklist – Student: Checklist that providers can personalize and give to health care patients who are entering post-secondary settings.
Region 4 Midwest Genetics Collaborative
Information on Healthcare Transitions for young adults
Technical Assistance on Transition and the Rehabilitation Act Project (TATRA)
Parent Information and Training programs funded by the US Department of Education, Rehabilitation Services Administration (RSA) focus on helping families prepare youth with disabilities for employment and independent living.
The Culturally Sensitive Individualization of Services and Supports
Information on Cultural Reciprocity and how providers can assist with transition planning when working with diverse families.
The National Alliance to Advance Adolescent Health
National initiatives in education, research, policy analysis and technical assistance in support of health outcomes for adolescents and the infrastructure changes needed to achieve them.
Simons Foundation Autism Research Initiative: Study aims to capture autism's transition into adulthood
A new study in the UK looks at young adults who are diagnosed with Autism Spectrum Disorders and the transition from pediatric to adult health care.
Youth and Young Adults Planning for the Future
Minnesota Department of Health Transition Resources
Minnesota Department of Employment and Economic Development
Employment options for youth and adults with disabilities
Programs, products and services devoted to disability issues in Minnesota
Resources for families and young adult consumers
Health Care coverage information for Young Adults
- “Voicing My Choices”
Advance Care Planning Guide for Adolescents and Young Adults. For families with children with serious illnesses; gives a way for children to communicate their preferences to caregivers.
- “Keeping and organizing Medical Records”
Information for family members, youth and young adults on what health care records and information to keep and bring to medical appointments
- “What does Health Have to do with Transition? Everything!”
Benefits and strategies for including Health in the Individualized Education Process
Person Centered Planning: A Tool for Transition
Using Person Centered Planning to assist teenagers and young adults plan and prepare for transitions.
Communicating With Doctors and Other Health Care Providers
Ideas for new health care consumers on preparing for a medical visit.
- Honoring Choices
Resources to encourage health care conversations including health care directives and end of life decisions.
- Health Care Directives
Fillable forms for patients to pre-plan health care decisions. Developed collaboratively and reviewed by the Honoring Choices MN Advisory Committee and is available in English, Hmong, Russian, Spanish and Somali.
- Health Hobbies
Students with disabilities give insight on hobbies that they have to help them stay healthy.